According to Marianne Leone, “People refer to him as a burden, but we never saw him that way. He was a joy to us, and a teacher. The feeling of loss never goes away.” She wrote a painful memoir, "Knowing Jesse".
I cannot help but think of Miles, he was expected to develop severe handicaps due to his prematurity. We planned on loving Miles and cherishing him unconditionally. During his one month of life, we loved him wholeheartedly. I adore these parents for showing Jesse unconditional love.